Sunday, April 13, 2008

Giving Thanks

Even through these most difficult days, Neil and I feel incredibly blessed by the love of friends and family. We are doing o.k., grieving for the loss of Sawyer, but hopeful for the future. It has been very comforting for us to read your posts and emails and know how much our family is in your thoughts. We will get through this.

We have probably become the nurse's worst nightmare though. We are so concerned for Zoe that we are calling and going to the hospital to check in on her a ton. Yesterday, she started to struggle a little bit on her CPAP. This is very common after a couple of weeks doing the work herself. Babies her size typically just get tuckered out. The doctors think she is also having more apnea because as her feeds go up in quantity, her growing stomach pushes on her diaphragm making it a little bit more difficult to breathe. They did run blood tests on her anyway and they came back normal so that was a huge relief.

I also got to hold her for the first time on Thursday which was very nice for both of us. Research shows that babies that do skin-to-skin time with mom and dad do better in the NICU so we will be doing that as often as we can when she's stable. Neil and I both think she knows us now. We talk to her through her glass castle and she looks over toward us with big eyes. She is still growing well, although she is not quite at the 2 pound mark.

Thanks again for your support. It means a lot to both of us.

37 comments:

Unknown said...

Margo, Neil and Zoe, I'm so sorry to hear about little Sawyer. Through it all, you are an inspiration, in the way you keep marching. Thank you for so lovingly sharing your experiences with us, and please know that you are in our thoughts and prayers.
Tracy and Tyler

Charlotte said...

Lots of love to you both this morning.

Lilly said...

Neil and Margo-
We are sending our positive energy your way. How sad it was to hear about little Sawyer- but his spirit will live on now with his sister. You are both so strong. Sending our love.
Chris, Chris and Lilly

Megan said...

Margo and Neil, We think about your family every day. Stay strong and know that we are here if you need anything.
Megan and Jason

maynard said...

Dear Neil and Margo -
Your Zoe and Sawyer blog site has allowed us to share with you in the joy and sorrow you have experienced during the past 16 days. Thank-you for including us in these important moments. Our optimism and support are with you each minute of every day. We commend the valiant courage you both are demonstrating through this extremely difficult time and we encourage you to remain strong, as we are with you heart and soul.
Maynard and Carolyn

Laura Schiff said...

Margo and Neil,
We are so sorry for your loss but admire your optimism during such a difficult time. I know that losing a child is difficult, but like you said, now you can focus on little Zoe as she continues to grow. Sawyer will live on in her and in you guys. People always say that this stuff happens for a reason. After my mom passed in January, I realized that that is a difficult thing to grasp when things don´t go your way and seemingly unfairly... but I like to think that their is a plan. Thank you so much for sharing your feelings with all of us through this blog. We feel like we are with you even though we are so far away. We will continue to think, pray and love you guys. Stay strong, but don´t be afraid to feel weak...your friends and family will help you through.
love, Laura and Aaron

Phil said...

Dear Margo, Neil and Zoe: I just returned from 3 days in an internetless part of Vermont and learned of your loss of your son and your brother. I am terribly saddened but hope for the very best for the three of you.
Love
Phil Holt

Pam Montgomery said...

Just loving you all. Uncle Pat and Pam

Maureen Dunn said...

Mike and I are so sorry for your loss, we wish we could carry some of your pain. You are on our minds and in our hearts. Much love to you all during this challening time.

Jan and Tony said...

Neil, Margo, and Zoe,

I am so sorry to hear about little Sawyer. My heart is with the three of you sending positive energy.

Jan

dogsblog said...

Margo and Neil,

Your strength is truly inspirational. My heart goes out to you and your family during these difficult times.

Love,
Sarka

jon & chris said...

Thinking of you and praying for you often.

Unknown said...

Dear Margo and Neil, I am so very sorry for your loss. As a nurse I can assure you that your nurses feel your pain and want to support you and help Zoe in any way they possibly can. Please know that the EPA children's health community is sending all three of you much love and support.
Liz Blackburn

J.R. said...

Margo & Neil- My family and I are very sorry to hear about Sawyer. I just read the news as I haven't been on my computer because we have been dealing with a family emergency as well. We are thinking about you all and wish you the best.

Lots of love,
J.R., Erika & Soleil

Unknown said...

You all are showing so much courage and love- as much as Zoe is a blessing to you, you two are a blessing for her. I am deeply saddened by the passing of Sawyer. You all are in my thoughts and prayers. Angels are about to care for you all. God Bless!
Larry Norton

Unknown said...

Margo and Neil, you are strong and even stronger with the many, many thoughts, prayers and support that have been flowing your way. I send you my utmost strength and love as you go through with this. Staying positive is great and focusing on the future with a bright and optimistic outlook is better. It is obvious you have that down. Keep that positive outlook. My love goes out to you two and Zoe. You have a wonderful circle of friends and family that are with you!
Paden

MacDonald's said...

Neil and Margo,
Kim and I are thinking of you and Zoe everyday. We are sorry for your loss. If there is anything we can do for you, please don't hesitate to ask. We are all family. Cherrish your time Zoe and never forget Sawyer. Be strong for Zoe.
Love Andy, Kim and baby Payton

Abby Wojcikiewicz said...

Your family is in my heart.

Love,

Abby

Anonymous said...

Neil, Margo and Zoe,

I am so bummed to hear the news about Sawyer. I am on the verge of tears as I think about it. I really wanted to meet him someday because I am sure he was an incredible person. I am very glad that Zoe is still doing well and I keep my optimism going that one day Irelyn, Teya and Zoe will be running around together. I love you so much and I am sorry that I didn't check in for the last couple of days. Thanks for keeping us updated and I will give you a call one of these days soon. Give me call if you need someone to talk to. Love Dan, Lorie, Irelyn and Teya.

Dan

Anonymous said...

Neil, Margo and Zoe,

I am so bummed to hear the news about Sawyer. I am on the verge of tears as I think about it. I really wanted to meet him someday because I am sure he was an incredible person. I am very glad that Zoe is still doing well and I keep my optimism going that one day Irelyn, Teya and Zoe will be running around together. I love you so much and I am sorry that I didn't check in for the last couple of days. Thanks for keeping us updated and I will give you a call one of these days soon. Give me call if you need someone to talk to. Love Dan, Lorie, Irelyn and Teya.

Dan

matthew and drue said...

Dear, Margo and Neil. I was so sad today to hear that Sawyer is no longer with us. Maybe he's moved on to be with Margo's dad and watch over the two of you and his sister along side his grandpa. I long to give the two of you a huge and see you in person. Matthew and I are sorry for your loss. You are in our thoughts each and every day. It has been nice reading your blog. We really appreciate you keeping us up to date and sharing with us. If you get a chance please email you physical address so that we may send Zoe a gift. (snowyhorses@hotmail.com ) We love you both. I am so thankful that you have eachother. Drue and Matthew

Matt Barrett said...

Margo, Neil, and Zoe -
We are heartbroken to hear about the loss of your son and brother. Courtney and I have you all in our thoughts and prayers. If you need anything at all please don't hesitate to call.

Matt and Courtney

Monroe said...

Neil, Margo and Zoe~
I am at a loss for words after
reading all of your blogs. You are both so strong and have had such a great attitude with everytMargo, Neil and Zoe`
I am at a loss for words right now after hing that has been thrown at you. I am so sorry to hear about your loss of little Sawyer. We have been thinking about your family so much lately (we were not aware of the blog until today). Michael called me yesterday to inform me of the bad news, and I found myself crying in the produce section of Fred Meyer thinking about this difficult journey you have taken. I commend your strength and I know that your positive energy is helping little Zoe get stronger each day. Thank you for sharing your thoughts with us, we are thinking of you often.
With love,
Mike, Maj and Tanner Hudson

Monroe said...

Just wanted to say sorry for the mess up with my comment. I have no idea what I did, but I hope you can understand it. Take care.

Courtney said...

Young Family - you remain an inspiration to us all. Our thoughts are constantly with you and if there is anything we can do for you - just name it.

Margo - you have always been there for me and I have never doubted that I can count on you for love and support. I love you so much, and you should know that I am here for you, too. If I can even be half as helpful as you've been to me it would make a huge difference - you are that amazing.

We love you,
Courtney, Paul & Scout

Hope said...

Margo and Neil -
It fills my heart to think about your family. Such strong, brave babies - just like their parents. I really admire the dignity and courage and tenderness and perseverence you've shown during this difficult time. You are in our hearts.
peace,
Hope & Stephen

Unknown said...

So sorry to hear about your loss, are thoughts are with all of you.

Love,
Peter and Erin Ehlert

Chelsea said...

Margo and Neil,

I'm so sorry to hear about your loss. My heart goes out to you during this difficult time. My thoughts are with you everyday.

Chelsea Schanno

Penny Harger said...

Dear Margo and Neil,

How brave, staunch and loving you have been. We are so sad to learn that Sawyer has lost his struggle. It is sad in part because he will miss having terrific parents. Please accept our tenderest sympathies.

We will keep Zoe in our thoughts and prayers, and looking forward to the day we hear that you have brought her home.

Penny and Bob

gretchen said...

i just wanted you to know that i am one more person in the many that have you in our hearts. i am sending all the positive energy i can muster to zoe, you both, and the rest of your family. best wishes during this difficult time, gretchen

sespanol said...

Margo/Neil and family,
The kids and I are sending you LOTS of love and positive thoughts your way. I am thinking of you and thank you for sharing this blog. God Bless.
Sending lots of hugs, Sarah Espanol (Kyla and Carlos too!)

Doug said...

We are all a part of eternity, and so is Sawyer as love is eternity. Doug Hallie Ryder

Pam Montgomery said...

Much love crossing the mountains. Uncle Pat and Pam

Jim/MaryRuth said...

Dear Neil and Margo,
It is Wednesday evening and we just talked to Sharon. We are so sorry to hear that Zoe is struggling and we pray so hard that all of you will find strength to overcome another challenge. Our thoughts are with you and we send our love to the three of you.

Love, Jim and Mary Ruth

Mike & Tami said...

Hey Neil & Margo,

We are so sorry to hear about Sawyer. We have been praying for all of you. You are strong, and Zoe is very fortunate to have such wonderful parents.

Mike & Tami

Mary Ann Odegaard said...

Margo and Neal:

Thinking of you this morning and sending warm thoughts your way. Keeping up on things daily with your Mom. You are an amazing family and I admire the way you have all come together to support each other. How wonderful that Rachel, Mark and Charlotte have been able to be here with you some of the time and I am sure having Sean just down the road is very helpful. And of course there's your mom....she knows she can be with you as you need her now.

Hope Zoe is more rested and improves quickly.

Mary Ann O.

Bob and Linda said...

Neil and Margo, We are so sorry to hear of Zoe's setback. She's so much stronger than Sawyer seemed to be. Our hearts and prayers are with you all.