Tuesday, May 6, 2008

Ups and Downs

As you all know, this is a roller coaster of an experience. I think I've said before what an understatement that is. It's true - nothing can prepare you for it. Zoe's been off the ventilator for almost a week now and has her good days and her not so good days. She's got preemie lungs - lungs that are damaged from being so early and needing oxygen support. She'll grow more lung tissue, but it takes time and all that will really help her is growing. So, this past week, she has had her good days and bad days. Today was a good day and her oxygen needs were down slightly. She got her first eye exam today which she definitely did not like. They're checking for retinopathy of prematurity, which is essentially abnormal blood vessels growing on the retina. Everything looks o.k. so far, but her eyes are still immature so they'll check again in a couple of weeks.

Zoe looks amazing. She is alert and really getting a personality. She gets angry when we all mess with her which she typically displays by getting very red all over and making a seriously mad face. She doesn't cry much, but definitely shows her dissatisfaction in other ways. She has been processing food (a.k.a pooping) really well. In fact, today, she had four dirty diapers in a row!

She weighs about 2 lbs. 14 oz. now and we're hoping to get her to 3 lbs. soon. We can't wait to show her off to all of you, but we've got a long way to go. She really is amazing and we are so proud of her every day.

14 comments:

Pam, aka Nana said...

It was so wonderful to see Zoe tonight...thank you for sharing your precious time with her. She was so alert and observing...and so beautiful. I long to hold her...
Love, Nana

Charlotte said...

She's the prettiest little gorilla I've every seen. Thanks for taking the time to update the blog. Tell Zoe that her Aunt Rachael is hoping for 3 pounds by Friday.

Aley said...

Margo and Neil,
Rob, Elvis, and I are keeping ourselves updated on your family journey. We continue to send all of our love your way and are so impressed with your courage and love for one another. We hope to see you soon and to meet beautiful Zoe.
Aley (Rob, and Elvis)

Celia said...

Yay Zoe! Keep that poop up! And keep amazing your wonderful parents with your growth!
Love, Celia

Hope said...

It's such a treat to hear how expressive and tough this little Gorilla is. No wonder we've all fallen for her. Go Zo!
love,
Hope

Janeen said...

Love the pictures of Zoe she is so precious and beautiful. Keep up the good work Zoe! Keep growing! You are amazing!
Love, The Arnolds

Mary Ann Odegaard said...

What a cute little girl she is!!!!! Can hardly wait to see her...thanks for the photos. Have a good time with our family this weekend...

Mary Ann O

Anonymous said...
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Anonymous said...

Yea Zoe! Sounds like you are getting big. I am super stoked to meet you sometime. We will come out and visit you as soon as you get home and are strong enough to have visitors. We are pulling for you out here in Montana. Love the Lochridges

Pam Montgomery said...

Just saw the picture of the sweetest toes!! Thanks for that treat.

Margo and Neil -- you are amazing; it's so hard to be realistic and so very hopeful at the same time and you do it, post after post. Know we love you -- this time the love comes from Gunnison and Dallas. (Tulsa and Houston yesterday and the day before!) So Zoe has vibes from some new places -- and you all have our thoughts and prayers.
Uncle Pat and Pam

Jim/MaryRuth said...

We are reading the story of Zoe everytime we get a new update. We are hoping and praying that the good days will soon far outnumber the bad days. She is growing right before all of our eyes. The photos are so cute and so special. We appreciate that you are letting all of us in on this private time of your lives. Take good care of each other,
Love,
Jim and Mary Ruth

Heidi Burgess said...

Hi guys,

Our hearts go out to you. We just learned of all that you have been through...and I am so sorry to hear about your little Sawyer.

Sounds like Zoe is getting stronger every day and growing as well. Please know that you are all in our thoughts and prayers. And we will send all of our positive energy and thoughts your way.

Take care...and as soon as the baby girl gets bigger and stronger, we want to meet her!

Love,

Jordy, Heidi, Sam and Gabriel

Heidi Burgess said...

Hi guys,

Our hearts go out to you. We just learned of all that you have been through...and I am so sorry to hear about your little Sawyer.

Sounds like Zoe is getting stronger every day and growing as well. Please know that you are all in our thoughts and prayers. And we will send all of our positive energy and thoughts your way.

Take care...and as soon as the baby girl gets bigger and stronger, we want to meet her!

Love,

Jordy, Heidi, Sam and Gabriel

Collin, Rebecca, Ursa, Amelia, Dominic and Baby Bonaface said...

Happy Mother's Day Margo!

Much love to you,
Becca